If I could earn a living doing what I love the most, I would like to work as an office administrator and be able to work along side the doctor and try to come up w/ some helpful ideas on how to cure neurological defects and how they are developed in the womb before the child is born, and as they grow up. I have a strong belief that children are special and have a “uniqueness” to them and deserve to live as normal of a life as possible w/out having to be on medication for the rest of their lives and be able to live as independently as possible.
I have a 7 yr old special needs child, Gabe whom was born w/ a rare neurological condition called Microcephaly. He has had genetic testing done @ Seattle Children’s Hospital, which resulted in finding that he has a duplication of his 12th chromosome. It could be part of the neuro defect he has, but the doctors aren’t exactly sure what’s caused it. Gabe developed epilepsy @ the age of just 3.5 yrs old. The seizures have been “controlled” w/ medication but have not stopped. Along w/ that, he also has a speech/cognitive delay, ADHD, ODD, and a mild case of Autism. He has had several EEG’s & @ 2 MRI’s done to try to find a cause but so far nothing has been effective. We are still going through testing to try to determine a cause as well as possibly finding a cure. The genetic doctors have been very helpful in explaining to me as clear as possible about my son’s condition and give me every hope that he will grow up to be independent and successful and live normally as much as he can.